The COVID-19 pandemic has now invaded pretty much all aspects of our daily lives. It's on everybody's mind, on all TV sets turned to the news channel. Society is afraid and the media breeds on fear. I'm willing to bet that disabled folks out there are afraid, too. Disabled lives are just as valuable as… Continue reading Being Physically Disabled During a Pandemic
Tag: SDR
When You’re Finally Free
As it is now March and officially Cerebral Palsy Awareness Month, I thought I'd write another post discussing it and how my feelings have changed from last year's CP Awareness Month post. There, I discussed feelings of self-love and that message is more or less the same. I am still in a place where I… Continue reading When You’re Finally Free
My Adventure in St. Louis: Part III
The first three days after surgery day (which they called, "day zero"), I was on an epidural catheter for pain management. My legs felt heavy, but they weren't completely numb. I could still wiggle my toes, but couldn't move my legs much. I was to stay on bedrest, only permitted to elevate my bed 45… Continue reading My Adventure in St. Louis: Part III
My Adventure in St. Louis: Part II
Valentine's Day. The big surgery day had finally arrived after months and months of anticipation. I woke up early, ignored signs of hunger and thirst as I couldn't eat or drink before the procedure, washed up, got dressed in comfy clothes and fuzzy socks with sneakers, and headed to the hospital. As I said in… Continue reading My Adventure in St. Louis: Part II
My Adventure in St. Louis: Part I
I'm not going to lie, as I flew to St. Louis with my loved ones by my side on February 11th, I was nervous, more nervous than I thought I was going to be. We arrived late that night, and consultations with the surgeon and his team took place the next day starting at noon.… Continue reading My Adventure in St. Louis: Part I
Three Letters to Begin My New Life
I knew there were several different ways I could start this post: that yes, I was having another surgery; that surgery was the reason I was putting other life stuff on hold, like applying for jobs or masters programs. I knew I had to put my health and quality of life first, and that jobs… Continue reading Three Letters to Begin My New Life
The Spastic Diplege 